life has a funny way of helping you out

Saturday, 08/18/18, 12:56pm

In the last few hours I've been thinking about expectations. Big expectations. Low expectations. Loads of expectations.

Each of us has some amount of expectations over our heads.

I don't think about it often enough, but I suppose I expect Nasser to work, to keep a job, to support our family, to provide healthcare so that I can be treated, to work because I feel unable to work.

I expect our kids to listen to us (at least some or most of the time. to be honest I suppose I expect it all the time and that's why I freak out everytime they don't listen). I expect our kids to help out in the house in certain ways- to set the table, to clear and clean the table especially when they make a mess, to clean up their toys when it's needed or I need it, to get themselves ready for school or for us going places, to do their homework, to eat what I feed them, to brush their teeth in the mornings and evenings, to take a shower when I tell them they really need it, to be nice to eachother and to us. Hmmm, I guess that's a lot of expectations.

I expect a lot of things out of myself. I expect to get myself to work out everyday. I expect for me to choose to eat healthy everyday, to stick to a plan to lose weight. I expect for myself to be strong for the people around me, and for myself. I expect to fight the depression. I expect myself to not let it trickle in, to control me. I expect to be capable, quickly, every time it hits, to fight, and to fight hard.

I expect a lot of more "normal" things as well. I expect to take care of my family, to keep a safe home, to provide support to my children and husband (emotionally, lovingly, as well as nutritionally, logistically, socially, and whatever). I expect to either work outside the home or to take on a lot of childcare in the home (or both).

I expect to try. really hard. I expect to try the things I know should could help me. I expect to work on integrating into my life things like regular exercise, healthy eating, mindfulness, practice in calming myself, reading, forgiving myself, dropping my bad thoughts into my bucket of soapy water (see previous post).

I have expected, going into each treatment over the years, that this would be the thing that worked. I expected to "get better" with electro-convulsive therapy. And I have, in particular in comparison to what I was going into it, but I think I expected more. I'm not sure what I expected/expect with every treatment. Maybe I expect(ed) that something out there will just make me miraculously 100% better. And I know that everyone deals with bad days, etc. I'm pretty sure the stuff I'm still experiencing are still within the depression spectrum. I was told recently that I'm "in remission". I'm still trying to figure out what that means. I guess by this definition, "if the disease is in remission, the disease has been controlled so that they are not as ill as they were", it would be valid. I suppose I need to modify my expectations. Depression/Bipolar II is a lifelong illness and can't be "cured" in the true sense, but only "remitted".

And I am not as ill as I was. And I am finding that other things are working more than they ever did (cognitive behavioral therapy for one, practicing strategies on my own, actively finding ways to improve my mood when it hits rather than ruminating, even if I start off ruminating). I guess I expected just wish I was cured, rather than remitted only.

I've been wondering how to "phase out" ECT. It's been every 4 weeks for a little while now, our appointment with the ECT doc this past Thursday was good, but it was much up to me. We came up with the options to either stop here and see how it goes (as has been an option for some time now) or to taper more slowly, getting myself to every 5 weeks, 6 weeks, up to 8 weeks, and stop there. Either way I plan to set reminders for myself to "check in" with my feelings, with how I'm doing. And I'll be setting up a doctor appointment to check in a few months after stopping to be sure I don't need a boost. I decided to set up the appointment for a treatment at about 5.5 weeks and I'll cancel if I'm feeling like that's the right decision. Tapering does feel a bit safer to me though.

I've been really judging myself when it comes to ECT lately. Maybe I had the expectation that I would be done sooner. Maybe it's this prejudice that I have against myself that I'm messed up because I still need ECT (maybe I have a prejudice against myself that I did mess up enough to need ECT in the first place). I do tend to feel like people are judging me when I mention treatment and it feels like they are thinking "wow, she's still doing that??". And of course, most, if not all, of this is in my head. But knowing that doesn't really help much.


I guess I need to remind myself that I'm in remission, not cured. If and when I need heftier treatment, be it ECT or something else, later on, whenever it is, in life, it is ok. It is and always will be a journey.


PS, here's what I've been working on a bit today, after starting to feel crappy. I'm currently calling it my "comfort book", which I may have mentioned in a previous post, but I've made some progress. These are all things/images/quotes/pictures that speak to me, provide me comfort and/or motivation.

and all these sorrows I have seen, they lead me to believe that everything's a mess

Monday, 08/13/18, 11:21am, 4:17pm, 5:30pm

My brain.

It's hard not to despise my brain when my depression strikes, or even just in thinking about or talking about my depression. Hmmm, maybe I'll change that to "the depression" rather than "my" depression. Maybe that helps, or can help, take away some of that self-shaming. "My" makes it sound like my fault.

Anyway.

I get these depressive thoughts that run me in circles thinking that "I suck", "I'm a failure at [insert anything and everything]", "I don't deserve to live", "I don't deserve to even be treated for depression", etc, etc. This morning I was trying to (and I've certainly tried this before as well) tell myself that "these thoughts are the depression", "they aren't real", etc. And I was capable enough to tell myself this (which is a long way from what I've been in the past, or even most of my crashes), but I couldn't get myself to believe this. I start saying things like "I suck so bad that I can't even stop believing all this even though I know it's the depression".

Nasser and I were discussing this morning how to fight these thoughts, you know, cuz I was in the midst of a crash. He talked about learning to recognize that these thoughts are happening and that these thoughts are originated by the depression, which is basically the foundation of using mindfulness for depression. But then we talked about, after recognizing this, placing these thoughts away. Sorta like all the distraction techniques.

I'm starting to get a good image in my head of where to place these thoughts. Last week I was at my sister's house. And she's really big into gardening and yard work, all of which I have a lot of trouble with. I saw that she has this method of taking care of these Japanese beetles that eat the tops of fruit trees. She keeps a little bucket of soapy water in the backyard and when she finds a beetle she puts it in there. The beetle can't escape because of the soap in the water and it drowns. I saw this method again last night when Nasser and I watched a video of a homemade yellow jacket trap and they used soapy water again to drown the yellow jackets in the end.

So now, I'm using the soapy water image to "trap" and "drown" my depression thoughts. The image helped this morning, but I haven't exactly experimented with it much. I'm not sure that it will work but I guess over the years I'm never sure that anything will work. I just have to keep trying.

The other thing that Nasser reminded me of this morning is that progress doesn't have to be fast. I don't have to become an expert at a particular method in a day. The whole idea that progress can be slow is something I need to work on, something I need to apply to everything I do. I'm getting there with losing weight and trying to get in shape. I've been trying to make bits of progress here and there. I've been trying to recognize that I can do 20min on the stationary bike at home and still feel like I did something worthwhile. And I'm trying to notice things like "hey, I haven't been snacking so much between meals lately". I don't have to lose 20 pounds in a few weeks or something. Even if the progress is slow, it's still progress.

I'm not sure if I've mentioned, and at the moment I don't feel like perusing my latest posts, I'm still getting ECT treatment but it's been every 4 weeks for pretty much the whole summer I think. Once we hit the 4 week stretch, after increasing the interval each time, the ECT psychiatrist gave me the option to stop there and see how it goes, or to do some more treatments at 4 week intervals and see how it goes. And I chose the latter. So now, Nasser and I plan to meet with the doctor on Thursday to discuss the plan moving forward. I think, or assume, that this meeting will determine that it's time to stop, but I also want to have a clear plan moving forward of how we'll check in to be sure I don't need to go back to it. My last treatment, 2 weeks ago, was... awful. Let me clarify. The treatment itself was fine although I seemed to have some more physical pain than usual, but then that physical pain seemed to last longer than it ever had before. And I seemed to have a big emotional crash as well, that didn't recover all too quickly, and maybe it's still a bit of an issue (although it's hard to tell since the boys go back to school on Wednesday and maybe I'm sick of the summer).

I feel mostly ready to be done with ECT. But then there's also this, I guess, crutch feeling to it. I'm scared to stop. I'm scared I'll stop and I'll steadily get worse and worse, but it will be hard to tell and I won't want to admit it, and then I won't want to admit or accept that I really just need another treatment boost or whatever. I'm scared it will be too hard to recognize what I need. It's always been hard to recognize that anyway. (I assume it has been, since my memory isn't all too good.)

But then I'm glad to stop and have more memory improvement. I still find it really difficult to discover things I don't remember, I find it difficult to talk with people that I don't talk with regularly and I have no memory of how much I've talked with them about my treatment or if I'm forgetting times when I did see them over this past year.

I'm glad to stop trying to figure out a bunch of logistics for every time I have a treatment.

I'm glad to stop having to deal with the fasting, the clear liquids only stuff, and the recovery over the couple to several to many days after.

I hope that this will go well. I hope I continue to have improvement in this fight. I hope that I continually find ways that really work and that I'm able to practice them and that I'm able to make some of them second nature. I hope that I can start feeling more confident in things in my life. I hope that I can feel confident enough to start and stick with choir again in a few weeks, like I plan on doing. I hope that I can keep feeling more and more confident as a parent, and really every other role I play in this life. I hope.

I will rise up

Monday, 03/12/18, 9:49am

Well. I had another crash this past weekend, this time 2 days instead of 1. Raises a little concern in me that it lasted longer than the previous one, yet reassuring that it wasn't longer than 2 days and that I feel pretty well back to normal this morning. Ugh though, this stupid stupid illness, depression, bipolar, or otherwise; it stinks with whatever you label it. And I can do a little bit of blaming this past crash on my f'ing period, cuz you know, of course that started this weekend. Sorry, yet not sorry, for sharing this with you all (whatever, I share a ton of personal stuff as it is, right????). And the horrid cramps yesterday!!! That surely didn't help.

All the emotions were tough though this weekend, despite the lightness I may give it. Yesterday was worse than Saturday, and there was more arguing with Nasser than I would have liked, despite everything he was doing and trying to do all weekend to support me.

And there were times when it wasn't quite as bad. Several times I thought we could make it to my brother-in-law's band concert on Saturday evening and my ex-choir's (the one I'm hoping to rejoin once ECT is over and I get back to some semi-normal memory state) concert on Sunday afternoon. But then the stupid emotional crap still came along and interfered. But then there were times I thought I was on the mend. I started reading a good book and have gotten super into it (one I read and loved a while back, yet of course, don't remember), I managed to do some messaging with friends, Nasser sent me out for a decent walk yesterday despite me really pushing back on it, after kids went to sleep Saturday evening Nasser and I enjoyed listening to a "2000s hits" playlist reminding us of our college days. It is important to take comfort in the ups, and then the long stretches of good that do come along at the end of the crashes. I need to get into a better successful habit of reminding myself that "this will pass" when I'm in the middle of those crashes. It's so ridiculously f'ing hard since my brain is quite literally telling me the opposite. I hate my brain sometimes.

But. I AM going to continue this crazy fight. I AM going to continuously try my damnedest to rise above it all and survive it. I AM going to continue to fight the mental illness stigma, fight for my fellow fighters, fight to prove that these illnesses ARE real and deserve everyone's support. Perhaps I'm not doing a ton with that fight, but this is the main reason I keep this blog; I hope that sharing, sharing it ALL, can little by little break down that stigma, can perhaps show that you can fight it even when there's plenty of days that are hard, that feel like you're gonna lose, that feel like it's impossible.

Here's my fighter face this morning:

It may not look super confident, but it is a face willing to continue this fight.