Monday, 03/12/18, 9:49am
Well. I had another crash this past weekend, this time 2 days instead of 1. Raises a little concern in me that it lasted longer than the previous one, yet reassuring that it wasn't longer than 2 days and that I feel pretty well back to normal this morning. Ugh though, this stupid stupid illness, depression, bipolar, or otherwise; it stinks with whatever you label it. And I can do a little bit of blaming this past crash on my f'ing period, cuz you know, of course that started this weekend. Sorry, yet not sorry, for sharing this with you all (whatever, I share a ton of personal stuff as it is, right????). And the horrid cramps yesterday!!! That surely didn't help.
All the emotions were tough though this weekend, despite the lightness I may give it. Yesterday was worse than Saturday, and there was more arguing with Nasser than I would have liked, despite everything he was doing and trying to do all weekend to support me.
And there were times when it wasn't quite as bad. Several times I thought we could make it to my brother-in-law's band concert on Saturday evening and my ex-choir's (the one I'm hoping to rejoin once ECT is over and I get back to some semi-normal memory state) concert on Sunday afternoon. But then the stupid emotional crap still came along and interfered. But then there were times I thought I was on the mend. I started reading a good book and have gotten super into it (one I read and loved a while back, yet of course, don't remember), I managed to do some messaging with friends, Nasser sent me out for a decent walk yesterday despite me really pushing back on it, after kids went to sleep Saturday evening Nasser and I enjoyed listening to a "2000s hits" playlist reminding us of our college days. It is important to take comfort in the ups, and then the long stretches of good that do come along at the end of the crashes. I need to get into a better successful habit of reminding myself that "this will pass" when I'm in the middle of those crashes. It's so ridiculously f'ing hard since my brain is quite literally telling me the opposite. I hate my brain sometimes.
But. I AM going to continue this crazy fight. I AM going to continuously try my damnedest to rise above it all and survive it. I AM going to continue to fight the mental illness stigma, fight for my fellow fighters, fight to prove that these illnesses ARE real and deserve everyone's support. Perhaps I'm not doing a ton with that fight, but this is the main reason I keep this blog; I hope that sharing, sharing it ALL, can little by little break down that stigma, can perhaps show that you can fight it even when there's plenty of days that are hard, that feel like you're gonna lose, that feel like it's impossible.
Here's my fighter face this morning:
It may not look super confident, but it is a face willing to continue this fight.
Monday, March 12, 2018
I will rise up
Friday, March 9, 2018
life is rough, rough (get up, get up, get up)
Friday, 02/09/18, 8:48am
It feels like it's been FOREVER since I wrote, and yet it's only been like a week and a half. And then of course, previous to that time was a full month. So clearly my perspective is totally off. Which, I think I can be forgiven considering this treatment I'm still undergoing, and the memory loss that's still going on.
I should mention, after last week's post, I did end up with a bit of a "crash" later last week. It was Wednesday night (like literally right before going to bed) through Thursday night. I was expecting to crash, and yet it still came as a bit of a shock. It still made me have no clue how to deal with it and left me as helpless as ever. In the morning on Thursday, I think it was after the kids had already left for school, Nasser ended up working from home the entire morning to support me. He sat down with me after I fought with him about how I was incapable of "deep breathing". And how he "didn't understand it because (he) wasn't dealing with depression." He ended up talking me through literally each deep breath in and each deep breath out, for a bunch of breaths. And then even just those several breaths brought me back from that totally helpless, totally freaking out edge. I was really surprised to feel that. In the end, I practiced deep breathing for a good 30-40 minutes, on my own, eventually adding some happy, calming music, yet still focusing on the breath. It made such a difference. I happened to have a doctor appointment scheduled with the ECT doctor, that unfortunately was inconsistent between their schedule and ours. When the assistant called me about 15 minutes after I should have shown up, based on their schedule, we ended up just speaking over the phone, with Nasser, me, and the doctor. We discussed the crash, and how completely normal that was, and about how well I was recovering. We discussed my mood stabilizer medication and about how the latest dosage only had brought my levels to just barely therapeutic. The next dosage level is still safe and so we all decided to go up to the next level. I'm there, as of this past Monday, and plan to get my levels checked for it next week, more because I'm curious, since we have a pretty good idea that they won't go down.
The rest of last Thursday went through a few ups and downs. I did quite well, at least for the initial beginning of the kids being home in the afternoon. At some point, RG was super angry and decided to "run away". At this point, a full week later, I can't really even remember what all caused this. Anyway, he pretty quickly afterward rang the doorbell, saying he thinks he "fractured his ankle, from dropping down out of the tree he climbed. I was great in being totally empathetic, getting him ice for his ankle and taking care of him, not mentioning the whole "running away" thing. Eventually after icing, when we discovered he could walk just fine and decided his ankle wasn't actually fractured, he changed in warmer clothes and went back outside to sit in the tree on his own. After all that though, I still came back down, emotionally, and was unable to take the boys to pick up Nasser's mom from the airport, which we had planned. Of course, Nasser's mom is one of the people I should feel least uncomfortable around when I'm depressed since she understands mental illness so much. And really, hugging her after Nasser and the kids arrived home with her, was incredible heart warming.
And then, after all that, I was totally fine again when I woke up Friday morning. It was a little weird to recover that well so quickly.
I had treatment on Monday this week, and this was after having skipped ALL of last week (a big deal for me), and I discussed the crash with everyone there and got a lot of confirmation for how normal this is, how I should expect the ups and downs, etc. My nurse also reminded me of how awesome it is my commitment to the treatment, to medication changes, how my "not giving up" really speaks to my resolve to "get better". It really spoke to my heart. I did have a bit of a down trend the later part of Monday and some of Tuesday this week, but I think that was a fair amount related to the treatment. I actually got myself to go for a short walk on Tuesday, unlike most day after treatment days, when I'm so tired and out of it still that I typically allow myself to lay around the house all day. I'm also getting into more of a schedule for exercise, running especially, since I still have that half marathon coming up in only, well, 3 months. Considering my current shape though, it's just barely, maybe, enough time to be ready for it.
Oh, and at treatment on Monday, we decided to push the next treatment, to, well, 16 days. The longest yet. Big, big deal in my mind.
And, I ended up talking a bit about my crash with my therapist this week. She reminded me of an analogy she used some time ago, that I've since forgotten, you know with my unreliable memory. She sometimes related the downs, the crashes, to getting your period. It's not really a surprise for it to show up, it's not pleasant certainly, but I do have the "supplies" to deal with it. And even things as bad as suicidal thoughts can be related to really awful cramps, I may respond with "aw crap!", but I do know that I'll get through this. Now certainly it's not a perfect analogy, but it did do a lot in my brain to, maybe, up my confidence in my ability to deal with the downs.
So anyway, despite a few downs, I'm still on this "better" trend, which I also still can't quite believe a lot of the time. But working on learning my new "normal".
Including this picture from this morning... me and Nasser enjoying some special Blue Bottle coffee that we've been receiving on delivery for awhile, a gift from my sister-in-law. I laugh out loud at TK in the background, possibly literally in the air on his bouncy ball, that he yesterday discovered hiding in the basement.
Cheers to everyone out there.
It feels like it's been FOREVER since I wrote, and yet it's only been like a week and a half. And then of course, previous to that time was a full month. So clearly my perspective is totally off. Which, I think I can be forgiven considering this treatment I'm still undergoing, and the memory loss that's still going on.
I should mention, after last week's post, I did end up with a bit of a "crash" later last week. It was Wednesday night (like literally right before going to bed) through Thursday night. I was expecting to crash, and yet it still came as a bit of a shock. It still made me have no clue how to deal with it and left me as helpless as ever. In the morning on Thursday, I think it was after the kids had already left for school, Nasser ended up working from home the entire morning to support me. He sat down with me after I fought with him about how I was incapable of "deep breathing". And how he "didn't understand it because (he) wasn't dealing with depression." He ended up talking me through literally each deep breath in and each deep breath out, for a bunch of breaths. And then even just those several breaths brought me back from that totally helpless, totally freaking out edge. I was really surprised to feel that. In the end, I practiced deep breathing for a good 30-40 minutes, on my own, eventually adding some happy, calming music, yet still focusing on the breath. It made such a difference. I happened to have a doctor appointment scheduled with the ECT doctor, that unfortunately was inconsistent between their schedule and ours. When the assistant called me about 15 minutes after I should have shown up, based on their schedule, we ended up just speaking over the phone, with Nasser, me, and the doctor. We discussed the crash, and how completely normal that was, and about how well I was recovering. We discussed my mood stabilizer medication and about how the latest dosage only had brought my levels to just barely therapeutic. The next dosage level is still safe and so we all decided to go up to the next level. I'm there, as of this past Monday, and plan to get my levels checked for it next week, more because I'm curious, since we have a pretty good idea that they won't go down.
The rest of last Thursday went through a few ups and downs. I did quite well, at least for the initial beginning of the kids being home in the afternoon. At some point, RG was super angry and decided to "run away". At this point, a full week later, I can't really even remember what all caused this. Anyway, he pretty quickly afterward rang the doorbell, saying he thinks he "fractured his ankle, from dropping down out of the tree he climbed. I was great in being totally empathetic, getting him ice for his ankle and taking care of him, not mentioning the whole "running away" thing. Eventually after icing, when we discovered he could walk just fine and decided his ankle wasn't actually fractured, he changed in warmer clothes and went back outside to sit in the tree on his own. After all that though, I still came back down, emotionally, and was unable to take the boys to pick up Nasser's mom from the airport, which we had planned. Of course, Nasser's mom is one of the people I should feel least uncomfortable around when I'm depressed since she understands mental illness so much. And really, hugging her after Nasser and the kids arrived home with her, was incredible heart warming.
And then, after all that, I was totally fine again when I woke up Friday morning. It was a little weird to recover that well so quickly.
I had treatment on Monday this week, and this was after having skipped ALL of last week (a big deal for me), and I discussed the crash with everyone there and got a lot of confirmation for how normal this is, how I should expect the ups and downs, etc. My nurse also reminded me of how awesome it is my commitment to the treatment, to medication changes, how my "not giving up" really speaks to my resolve to "get better". It really spoke to my heart. I did have a bit of a down trend the later part of Monday and some of Tuesday this week, but I think that was a fair amount related to the treatment. I actually got myself to go for a short walk on Tuesday, unlike most day after treatment days, when I'm so tired and out of it still that I typically allow myself to lay around the house all day. I'm also getting into more of a schedule for exercise, running especially, since I still have that half marathon coming up in only, well, 3 months. Considering my current shape though, it's just barely, maybe, enough time to be ready for it.
Oh, and at treatment on Monday, we decided to push the next treatment, to, well, 16 days. The longest yet. Big, big deal in my mind.
And, I ended up talking a bit about my crash with my therapist this week. She reminded me of an analogy she used some time ago, that I've since forgotten, you know with my unreliable memory. She sometimes related the downs, the crashes, to getting your period. It's not really a surprise for it to show up, it's not pleasant certainly, but I do have the "supplies" to deal with it. And even things as bad as suicidal thoughts can be related to really awful cramps, I may respond with "aw crap!", but I do know that I'll get through this. Now certainly it's not a perfect analogy, but it did do a lot in my brain to, maybe, up my confidence in my ability to deal with the downs.
So anyway, despite a few downs, I'm still on this "better" trend, which I also still can't quite believe a lot of the time. But working on learning my new "normal".
Including this picture from this morning... me and Nasser enjoying some special Blue Bottle coffee that we've been receiving on delivery for awhile, a gift from my sister-in-law. I laugh out loud at TK in the background, possibly literally in the air on his bouncy ball, that he yesterday discovered hiding in the basement.
Cheers to everyone out there.
Labels:
better,
breathing,
ECT,
exercise,
half marathon,
medication,
mental illness,
Nasser,
period,
RG,
TK,
treatment
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