Sunday, 08/27/17, 6:53am
Guys. I haven't posted in almost a month, and that was about Alaska. The last ECT post was towards the beginning of July, so I feel like I've been really out of touch. I've drafted a blog post like... yeah... three times this month, trying to get there, and unable to.
I guess most of this month, we've been working on getting out of the acute phase and having treatment 3x a week to some form of "maintenance phase". True maintenance is like once every 3-5 weeks, and I'm not there at all. For several weeks I was going 2x a week because I just couldn't go fewer times. Every time I tried, I'd get worse and like need treatment again. This past week was the first week where I only went once in the week, so that was a big step forward... but... I wouldn't say it went perfectly. Friday evening I had a pretty depressed emotional time and didn't recover that evening, so maybe I should have had treatment that day after the treatment on Wednesday, but whatever. I did much better yesterday actually, and Monday is a big day. Not only do I have treatment that day, in the morning I meet with the sleep technician to receive my CPAP, which I am, to be honest, super excited about. I have heard lots and lots of things about sleeping with a CPAP, and I'm not going in expecting it to work right away or the first mask to be the right, perfect one for me. But I am expecting good things eventually with this treatment. I'm hoping for good things quickly, but you know, we'll see. Oh- did I tell you about this yet, dear blog? I don't believe I have. Yeah, I'm about to start being treated with a CPAP while I sleep. Because, I had an in lab sleep study, and they estimated me to have 13.5 sleep disruptions per hour while I sleep. That's kinda nuts, right? I mean, granted, I didn't sleep well in the in lab sleep study with all the wires all over me, but whatever, I have sleep issues enough regardless.
So, we're hoping the CPAP treatment helps me a bunch, eventually at least, and with that help, I'm much more able to reduce the ECT treatments to a true maintenance. Because by the time I get to true maintenance, I'll be out of the 24-7 supervision requirement and I'll only need help from someone when I actually have treatment. Because yeah, Nasser finished out his leave of absence from work a couple weeks ago unfortunately, so I've been relying on my parents mostly the last couple weeks. But it's hard when they have their own things they need to get done. We're noting a few siblings or siblings in law who can help at least once in a while so that we can spread the help out. Hopefully that will improve things. Plus at least getting together more with siblings and nephews when my kids get out of school so that they have cousins to play with. Cuz they definitely get bored with just me and my parents every day after school.
The kids are back in school now as of the last week and a half, and that's going decently well, so far. I'm feeling a little better with them in school, as opposed to camps; there's at least less complaining about school, haha. I guess since they're home or out of school, at least, in the afternoons, that must help them significantly.
Ok, I'm going to leave this blog post there for today. I'm not really feeling up to writing much more and I don't want to leave yet another draft incomplete. Hopefully I'll get to blogging a little more often again. We'll see. I love you all~
